Services For Families
Respite care affords families of children with life-limiting illnesses the luxury to relax and rest from their children's daily medical and personal care routines. TGF will provide weekend respite for children 0 to 5 years old the first year our doors open. We will provide respite service 7 days a week for children 0 to 18 years old in our second year.
Our respite care team will comprise of pediatric registered nurses, licensed practical nurses, state-tested nursing assistants, home care nursing assistants, interns and volunteers. We value the safety of the children we care for. All direct care staff, volunteers and contractors will complete a background check through the Bureau of Criminal Investigation (BCI) annually.
TGF will provide additional assistance through a number of initiatives that will benefit both our families and the professionals who take care of them. We will:
Provide workshops educating the community about palliative and respite care needs for children and adolescents with life-limiting illnesses.
Refer children and families to local services in the community.
Develop and manage community support groups for parents.
Provide parent education, counseling and spiritual care.
Create and publish books about children and adolescents with life-limiting illnesses.
Create book clubs for siblings.
Develop and present professional workshops on pediatric palliative care for care providers and medical professionals.
If you are a family with a child who has a life-limiting illness and need respite care, we invite you to take a survey by clicking the Family Survey button above. Your information will provide the data we need to educate the community about respite care and to be your advocates to state agencies and lawmakers.
We will develop relationships with families, medical providers, the Ohio Department of Developmental Disabilities, Medicaid waiver case managers, higher education institutions and nonprofits in Greater Cleveland.
Program Bereavement Support
TGF and its volunteers will assist six families in 2017 who have lost a child within the last year. TGF will provide grief support, and a bereavement basket with items and information that will help parents, caregivers and siblings process their grief. Information will include local counseling agencies that provide grief counseling.
Get Out of the House Day
We will provide a respite program, Get Out of the House Day, allowing children ages 5 to 18 years old to attend community functions of their choice. TGF hopes to provide a Get Out of the House Day for 6 children and their families in 2017.
Celebrate Their Lives
TGF will supply blankets we've had blessed for infants who either die in the NICU or as patients in hospice or palliative care settings. We will also donate these blankets to high-risk labor delivery units, neonatal intensive care units, pediatric hospice and pediatric palliative organizations throughout Greater Cleveland. We plan to distribute 100 receiving blankets in 2017.
Pediatric Palliative Care Education
TGF will present seminars for nursing students at local colleges and universities to increase awareness of pediatric palliative and respite care.